Re-Post: Impact of Increased Down Syndrome Testing Will Be More Abortions
Note: This is a re-post from my old blog and was originally published January 5, 2007. I’ve done some very minor editing for clarity. Unfortunately, my prediction (an easy one, I admit) has come true.

The American College of Obstetricians and Gynecologists now recommends that “all pregnant women, regardless of their age, should be offered screening for Down syndrome” and that “screening for Down syndrome should occur before the 20th week of pregnancy.” The AP picked up the story, and it got wide distribution.
While additional knowledge about an unborn baby can be very beneficial, especially so parents can choose an appropriate hospital for the birth and make other preparations for specialized care, in this case the primary impact of the additional testing will be more parents aborting babies prenatally diagnosed with Down Syndrome. In the United States, parents decide to abort more than 80% of such babies, and the rate is even higher in Canada and Great Britain. (UPDATE: the abortion rate in the US has climbed to an estimated 92%)
These decisions to abort are often influenced by pressure from doctors and based on outdated and false assumptions about people with Down Syndrome.
A study (PDF link) previously published in the same journal as the new testing recommendation showed about half of mothers who receive a prenatal diagnosis of Down Syndrome “felt rushed or pressured (by her obstetrician) into making a decision about continuing the pregnancy” and that “obstetricians did not supply enough up-to-date printed materials or phone numbers of other parents who have children with DS” (Skotko, Brian. “Prenatally diagnosed Down syndrome: Mothers who continued their pregnancies evaluate their health care providers.” American Journal of Obstetrics and Gynecology. March 2005: 670-677.).
In the past, children with Down Syndrome were almost always institutionalized and given little education and substandard medical care. Today’s medical advancements, better early intervention and education, help from local support groups, and life at home with parents and siblings have made a tremendous difference in the achievements, life expectancy, and quality of life of people with Down Syndrome.
Life expectancy more than doubled from 1983 to 1997, from 25 years in 1983 to 49 years in 1997. Current research indicates the life expectancy of a baby born with Down Syndrome today is 55 or higher, and rising.
With proper early intervention, educational placement, and high expectations, fewer than 10 percent of children with Down Syndrome will have severe mental retardation; most will have mild to moderate learning disabilities. Many graduate high school, and some go on to college (PDF link). Many adults live independently, hold jobs, marry, and participate as full and valuable members of society.
And while all this positive information about Down Syndrome is true and important, it pales incomparison to my experience earlier this week when Caedon, our 15-month-old son with Down Syndrome, greeted me at the door by standing up and raising his arms in expectation of me picking him up and holding him. The light in his eyes and the joy in his smile are far beyond detection by any test.






